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The Library/Long-Form/Having Uncomfortable ConversationsSeptember 29, 2026

The Library · Long-Form · 2 min read

Why Caregivers Need Their Own Advance Care Plan Too

Caregivers plan every detail of someone else's death and skip their own. A death doula on why that's backwards and how to do it in ten-minute pieces.

By Michael Hawley · September 29, 2026

Michael HawleyMichael HawleyDeath DoulaSeptember 29, 20262 min read

TL;DR

2 min read · Long-form
  • Caregivers routinely plan someone else's end of life in detail and never plan their own.
  • Caregiving consumes the quiet, uninterrupted time self-discovery requires, so the plan gets skipped, not refused.
  • Doing your own ACP first makes the hardest conversations with the person you care for easier.
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I've watched caregivers plan every detail of someone else's death. The proxy. The DNR. The funeral preferences, down to specific wording. Then they never sit down and do the same for themselves, as if planning only applies to the person they're caring for.

It applies to you. Writing your own advance care plan can be an eye-opening exercise for caregivers, and it's one you shouldn't skip.

Caregivers Skip Their Own Routine Care First

A CDC caregiver brief found roughly 81 percent of women and 77 percent of men caregivers age 45 and older get a routine checkup in a given year. That means a meaningful share skip it entirely, usually because there's no time left after managing someone else's care. Every hour is already accounted for.

An advance directive only matters in a crisis that isn't happening to them right now, so it falls even further down the list than the checkup does. It gets pushed past the point of being addressed at all.

Managing Someone Else's Decisions Doesn't Prompt Your Own

Caregivers can spend years managing someone else's end-of-life decisions in careful detail and never make their own. That isn't neglect. Caregiving consumes the exact bandwidth self-discovery needs: quiet, uninterrupted time to sit with hard questions about your own life.

Your Own ACP Prepares You for the Hardest Conversations

Going through the process yourself means sitting with your own resentment, your own limits and your own grief before a crisis arrives and leaves you no time to think. Doing that work in advance tends to make the conversations you're already having with the person you care for easier too. You've practiced the honesty on yourself first.

If you don't know where to begin, start with the five discovery questions.

It Fits in Ten Minutes, Not a Free Weekend

This can happen in the gaps. Ten minutes here. One honest conversation there. It doesn't need a cleared weekend, which caregivers rarely have.

The same hour of real thought that works for anyone else works for a caregiver. It just has to be found in smaller pieces, scattered across whatever time exists. The full picture of caregiver burnout is here.

Sources cited

Otherside Life · The LibraryEnd

Common questions

Why do caregivers skip their own advance care plan?
Not out of neglect. Caregiving consumes the bandwidth self-discovery requires: quiet, uninterrupted time to sit with hard questions about your own life. An advance directive only matters in a crisis that isn't happening to them yet, so it drops down the list.
Do caregivers skip their own health care?
Many do. A CDC caregiver brief found roughly 81 percent of women and 77 percent of men caregivers age 45 and older get a routine checkup in a given year, which means a meaningful share skip it entirely.
How long does it take a caregiver to make an ACP?
It can happen in the gaps: ten minutes here, one honest conversation there. It doesn't need a cleared weekend. The same hour of real thought that works for anyone works for a caregiver, found in smaller pieces.
How does a caregiver's own ACP help the person they care for?
You sit with your own resentment, limits and grief before a crisis, and the honesty you practiced on yourself makes the conversations with the person you care for easier.

From this series

Having Uncomfortable Conversations

Advance directives, caregiver burnout, a parent’s stories, a coworker’s loss: death doula Michael Hawley keeps finding the same missing piece under all of it, the conversation nobody modeled how to have. Start with why that silence costs so much, then go deep on advance care planning, caregiving and dementia grief, capturing family legacy, and building death literacy in your workplace and community.

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Written by
Michael Hawley
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Grief, Families

Michael Hawley

Death Doula

Walking alongside the dying since the AIDS crisis in San Francisco. Committed to one thing: that no one dies alone, and no family is left without a guide.

Otherside Life coordinates; care is provided by the practitioner. Coordination only. Not legal, tax, financial, medical advice or funeral services.