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The Library/Long-Form/Having Uncomfortable ConversationsSeptember 29, 2026

The Library · Long-Form · 2 min read

What Makes Life Worth Living? 5 Discovery Questions to Ask Before Writing Your ACP

Skip the form until you've answered these. A death doula shares the five discovery questions he walks clients through before anyone touches a directive.

By Michael Hawley · September 29, 2026

Michael HawleyMichael HawleyDeath DoulaSeptember 29, 20262 min read

TL;DR

2 min read · Long-form
  • Don't start with the form. Start with what makes your life worth living.
  • The five questions: what you love, your minimum, what you'd regret enduring, who needs to hear it, and the version of "kept alive" you would not want.
  • Once you've answered them, the paperwork takes about twenty minutes.
On this page

Most people freeze at the advance directive form. Pen in hand, legal language staring back, no idea where to start or what any of it means for their own life.

Skip the form. Ask yourself what makes your life worth living first. Everything on the form follows from that answer.

1. What Do You Love About Your Life Right Now?

Be specific. The abstract version of this question gets an abstract answer, and an abstract answer collapses the moment it has to guide a real decision. I have two cats. Losing the ability to interact with them matters directly to my own answer. It's a small, concrete detail, and details like that are what make this process work instead of staying theoretical.

2. What's the Minimum You Need to Still Feel Like Yourself?

This isn't the same question. It's not about what you love. It's the floor beneath which you wouldn't call it living anymore, the line where existence stops feeling like your own life.

For some people that floor is communication: being able to talk and be understood. For others it's physical independence: moving and acting without full reliance on someone else. There's no correct answer. Only an honest one, and it's different for almost everyone.

3. What Would You Regret Enduring More Than Missing?

Under all the medical terminology, this is what full code versus quality of life comes down to. Most people have never asked themselves directly before they're forced to answer under pressure.

Would you risk broken ribs and a slim shot at recovery? Or would you avoid that risk, even if it costs you a smaller chance of coming back at all? Neither answer is wrong. Only one is yours, and you won't know which until you sit with the question honestly. Full code, explained.

4. Who Needs to Hear This From You, More Than Once?

Naming a healthcare proxy on paper does essentially none of the work if they don't know your reasoning. So the real task is to identify that person and tell them the specifics from the first three questions. Not the general idea. The specifics. Then say it again later, because one conversation fades. How to choose your proxy.

5. What's the Version of "Kept Alive" You Would Not Want?

People surprise themselves here. When they sit with it honestly, it's rarely death itself they fear. It's a specific state they don't want to exist in. Name it precisely instead of leaving it as a vague dread. That precision is what makes a directive usable when someone else has to read it and act on it under pressure.

Once you've answered all five, the paperwork takes about twenty minutes. It's almost incidental. The real work already happened in the thinking, not the signing.

Otherside Life · The LibraryEnd

Common questions

What questions should I ask before writing an advance care plan?
Five. What do you love about your life right now? What's the minimum you need to still feel like yourself? What would you regret enduring more than missing? Who needs to hear this from you, more than once? What version of "kept alive" would you not want?
How do I know what quality of life means to me?
Be specific. Abstract answers collapse when they have to guide a real decision. Name the concrete thing you'd miss, such as talking and being understood, moving without full reliance on someone else, or interacting with the pets you love.
How long does an advance directive take once I've decided?
About twenty minutes. The thinking is the real work. Once you've sat with the five questions honestly, the paperwork is almost incidental.
Who should I tell my advance care plan to?
Your healthcare proxy, in specifics, not the general idea. Tell them your reasoning, then tell them again later, because one conversation fades.

From this series

Having Uncomfortable Conversations

Advance directives, caregiver burnout, a parent’s stories, a coworker’s loss: death doula Michael Hawley keeps finding the same missing piece under all of it, the conversation nobody modeled how to have. Start with why that silence costs so much, then go deep on advance care planning, caregiving and dementia grief, capturing family legacy, and building death literacy in your workplace and community.

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Michael Hawley
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Grief, Families

Michael Hawley

Death Doula

Walking alongside the dying since the AIDS crisis in San Francisco. Committed to one thing: that no one dies alone, and no family is left without a guide.

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